Author: Bluebond-Langner, Myra
Hardback; Book; 3 Tables
320 pages
Published: November 1996
University Presses of California, Columbia and Princeton
ISBN: 0691027838
This item non-returnable. Order may not be canceled.

Bluebond-Langer's The Private Worlds of Dying Children explored the world of terminally ill children. Her newest book examines the lives of those who live in the shadows of chronic illness: the parents and well siblings of children with cystic fibrosis. Through a series of narrative portraits, she draws readers into the lives of nine families at different points in the history of the illness, from diagnosis through the terminal phase. 3 tables.This text suggests that understanding the impact of the illness of a chronically ill child on their family lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion.